Supporting people with developmental,
cognitive and intellectual disabilities to be
actively involved in their home communities.

Useful Links

Useful Links

Our primary focus will always be on developmental disabilities advocacy
and related info, but we have made room on our Useful Links page for a limited
number of other wellness-related resources, pending internal review.
We reserve the right to decline requested postings of URLs to the LEAP website.

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SUFU is a statewide coalition with representatives all over the state who work to support local and statewide self-advocacy organizations to network with each other and with national organizations.
Speaking Up For Us of Maine

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Its mission is to join with individuals, families, and communities to encourage and assist people with developmental disabilities, mental health disorders, and substance abuse disorders to achieve good health and meaningful living.
Maine Department of Health & Human Services (DHHS)

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Maine Parent Coalition - This Coalition began in May, 2006, formed by a group of parents of individuals with developmental and related disabilities to create a system of quality housing and personal supports that is person and family centered, with choice and dignity being at the forefront of efforts. 
Maine Parent Coalition 


“Maine has built a fantastic coalition of family members, providers and other interested parties. It started building a few years ago when the father of a young man with disabilities began reaching out to other parents and providers. This group is called The Maine Coalition for Housing and Quality Services. It is chaired by Cullen Ryan, a dad, and also Executive Director of Community Housing of Maine. It meets monthly in Portland. It has several I.T. sites around the state. There are guest speakers every month. They include state leaders, legislators, and providers with particular insights and expertise.
This coalition, in conjunction with a small group of providers who have sought legal advice about challenges here in Maine, and our state association, joined forces last spring and did absolutely fantastic things with the media, the legislature and the community. We ended up getting the state to pull a devastating rule that would have crushed the Waiver program.  The coalition also inspired a parent group that has chapters around the state called Community Connect.  I suggest that you find about more about this by going to:  http://www.maineparentcoalition.org.”

(shared by Bonnie Jean Brooks, President & CEO of OHI in Hermon, ME.) 

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Caregivers' Corner - “Parents of children with disabilities encounter many questions and challenges that most parents never experience. If you are the parent of a special needs child, it is important to know where to turn for reliable answers and emotional support and what resources are available. Caregiver’s Corner is designed to be a comprehensive listing of organizations, support groups, events, services and opportunities to empower parents and caregivers of children with disabilities.”
www.colleran.com/caregivers-corner

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The Social Role Valorization Implementation Project (SRVIP) is a human service training, evaluation and consultation effort aimed at addressing the social devaluation of impaired and other vulnerable people in contemporary society. Social Role Valorization (SRV), as articulated by Wolf Wolfensberger, PhD, is the theoretical base.
SRVIP

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Internet-based information to assist all Maine citizens to have access to resources to be full participants across all Maine communities.
Online Maine Resources for People with Disabilities

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“Imagine not being able to access all parts of your home. Imagine not even being able to get through the front door. Every day, disabled individuals find that their homes need to be modified in a way that gives them easier access. These modifications make it possible for them to stay in their home and live an independent life…”
Lifts and Other Home Adjustments for Disabled Individuals

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"Every year, more Americans living with disabilities are able to call themselves homeowners. Thanks to support and legislation such as the Americans with Disabilities Act (ADA), having a home to call one’s own is now an achievable dream for more people than ever before. For many individuals, purchasing a home is only half the battle, since the nature of someone’s disability can impact many areas of life – including the way he or she accesses, maneuvers through, and enjoys activities at home."
Grants for Home Modification: 16 Resources for Homeowners with Disabilities

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Personal Finance Guide for People with Disabilities
http://www.calculators.org/savings/people-with-disabilities.php


8 Steps for Learning Disabled Students Who Want to Go to College
http://www.usnews.com/education/articles/2010/12/02/8-steps-for-learning-disabled-students-who-want-to-go-to-college


Guide to the 2017 Top Online Schools for Students with Disabilities provides a comprehensive breakdown of accredited schools that offer online degree options for students with disabilities.
“Of the 1,265 schools researched by SR Education Group, these 46 colleges represent the most disability-friendly online schools for providing the highest level of support, the widest breadth of accommodations, and the most comprehensive resources for students with disabilities.”
https://www.guidetoonlineschools.com/online-schools/students-with-disabilities

Guide to the 2017 Most Affordable Online Colleges for Students with Disabilities ranks accredited institutions with online degrees that combine exceptional accommodations for students with disabilities and affordability. “These 24 colleges researched by SR Education Group represent the most affordable and supportive online schools for students with disabilities.
Beyond offering low-cost online degree options, these schools provide superior resources and accommodations for students who experience disabilities from visual or hearing impairment to learning disabilities, among others.”
https://www.onlineu.org/most-affordable-colleges/students-with-disabilities

Comprehensive Tech Guide for People with Disabilities
https://collegestats.org/resources/technology-guide-for-people-with-disabilities/

The Guide to Buying Used Accessible Vehicles
http://www.lagrangecountrydodge.com/blog/2016/october/12/guide-buying-used-accessible-vehicles.htm


34 Great Jobs for People with Disabilities
http://www.trade-schools.net/careers-for-people/who-are-disabled.asp

Travel Tips for Workers with Disabilities
https://www.monster.com/career-advice/article/travel-tips-for-workers-with-disabilities


The Disabled Job Seeker's Guide to Becoming a Real Estate Agent
https://www.redfin.com/blog/2016/02/the-disabled-job-seekers-guide-to-becoming-a-real-estate-agent.html


Types of Service Dogs
http://caninesforkids.org/service-dogs/

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MDDC assures that individuals with disabilities and their families participate in the design of, and have access to needed community services, individualized supports, and other forms of assistance that promote self-determination independence, productivity, integration, and inclusion in all facets of family and community life.
Maine Developmental Disabilities Council

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ANCOR is a nonprofit trade association representing private providers who provide supports and services to people with disabilities.
American Network of Community Options and Resources

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MPF is a statewide organization that provides information, advocacy, education, and training to benefit all children. We promote individual aspirations and community inclusion for people with disabilities.
The Maine Parent Federation

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Maine's University Center for Excellence in Developmental Disabilities Education, Research and Services.
The University of Maine Center For Community Inclusion & Disablity Studies

College Resources for Students with Disabilities:
http://www.affordablecollegesonline.org/college-resource-center/resources-for-students-with-disabilities/


Scholarships & Financial Aid for Students with Disabilities:
http://www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities/

http://www.affordablecolleges.com/resources/scholarships-students-with-disabilities/

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For those interested in caring professions, here’s a look at what it takes to become a Certified Nursing Assistant, with programs in numerous states, practice tests, and other online resources.

http://www.nursing.org/careers/certified-nursing-assistant/

https://www.youtube.com/channel/UCf-5Z_gO1g0hmcZynXiYQ4g?sub_confirmation=1

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2-1-1 Maine is a comprehensive statewide directory of over 8,000 health and human services available in Maine. The toll free 2-1-1 hotline connects callers to trained call specialists who can help 24 hours a day, 7 days a week. Finding the answers to health and human services questions and locating resources is as quick and easy as dialing 2-1-1 or visiting www.211maine.org

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The Community Connector is a searchable database of health and human service resources in greater Franklin County, Maine. This website is made possible by the Healthy Community Coalition and the Franklin Resource Network. It features ways to keep you connected in your community and, as a result, healthy as well.
The Community Connector

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Health Topics A to Z - Check out our disease prevention topics and tools to help you and your family stay healthy. Browse our categories, choose a population, or use the A to Z search.
https://healthfinder.gov/HealthTopics/

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American Chronic Pain Association | Resource Guide to Chronic Pain Treatment
https://www.theacpa.org/uploads/documents/ACPA_Resource_Guide_2016.pdf

Facts about Chronic Pain and Filing for Disability
http://www.ssdrc.com/ssd-chronic-pain.html

Pain Management and Opioid Abuse
http://www.aafp.org/patient-care/public-health/pain-opioids.html

The 45 Warning Signs of Prescription Drug Abuse
http://www.drugrehab.org/the-45-warning-signs-of-prescription-drug-abuse/

Information and tips on how to get started, make a plan and stay tobacco-free
http://tobaccofreelife.org/

When Pain Accompanies Depression | DepressionToolkit.org
http://www.depressiontoolkit.org/aboutyourdiagnosis/depressionpain.asp

How an Anti-Inflammatory Diet Can Relieve Pain as You Age
https://health.clevelandclinic.org/2015/11/anti-inflammatory-diet-can-relieve-pain-age/

The Science of Sleep: How Healthy Sleeping Habits Can Reduce Chronic Pain
http://www.us-mattress.com/extra-sleep-could-reduce-chronic-pain.html

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G.E.A.R. Parent Network
G.E.A.R. is a wonderful program providing free workshops, support groups, and a toll-free number for parents of children with behavioral health needs throughout the state of Maine. FMI: Please e-mail Randy Moser at rmoser@crisisandcounseling.org

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Spread the Word to End the Word
R-Word Campaign

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On May 25, 2011, this Public Service Announcement aired across multiple networks, including the majority of Fox cable channels and regional sports networks, including MTV, USA Network and Turner networks including TNT, TBS, truTV and CNN, so we hope you've seen it! To view the PSA, learn more about it, and share it with others, please visit the R-word website: www.r-word.org/r-word-not-acceptable-psa.aspx

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Another helpful resource for travelers with various types of developmental disabilities, shared by students from the Valley Charter School
Disabled Travelers

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Must-know airline info: Tips for travelers with disabilities
http://www.cheapflights.com/news/traveling-with-disabilities/

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TN LEND/UCEDD Healthy Bodies Toolkit - Addresses Puberty in Adolescents with Developmental Disabilities
Healthy Bodies Toolkit

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In 2013, the Mayo Clinic found that nearly 70 percent of people take at least one prescription drug. Because there are so many people consuming prescription drugs, we believe informing them of the risks involved is paramount. Our easy to navigate online database is constantly being updated, and provides comprehensive, unbiased information about serious side effects, complications, and interactions of commonly prescribed drugs.
http://www.rxdangers.com/

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“Drug and alcohol abuse is one of the most destructive issues in a person's life; not just for the addicted person, but for anyone around them…  Each year, the DrugAbuse.com hotline connects thousands of people with substance abuse treatment programs throughout the U.S. toll-free. Thanks to our hotline supporters, who answer calls 24/7, 365 days per year, you can discuss treatment options with well-established, carefully-selected providers across the country, each specializing in drug and alcohol rehabilitation.”   
Included in this webpage’s resources are Sites for Maine Substance Abuse.
http://drugabuse.com/usa/drug-abuse/maine/

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Information and Answers for People Fighting Addiction
www.drugrehab.com

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Providing Addiction Information and Treatment Center Reviews
Addiction Center is your comprehensive addiction information hub. We are the definitive guide to the dangers of abusing alcohol, illicit drugs, prescription drugs and more. We review top treatment centers to help you find the one that gives you or your loved one the best chance at a successful recovery.
https://www.addictioncenter.com/

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Addiction Guide is your reliable source on addiction and the dangers of illicit substances. We cover how drugs and alcohol affect the body, how to identify the signs and symptoms of abuse, and where to seek effective treatment. Our mission is to guide you and your loved ones to a healthier life.
https://www.addictionguide.com/resources/

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“Making a plan to quit smoking is the first step to quitting for good.  Take the first step here, and say goodbye to cigarettes forever.”
https://quitday.org/

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“Mental Health Equality: When all people have the same rights, treatment and access to care regardless of mental illness or condition.”
http://nostigmas.org

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External Online Groups - Featured Groups for Caregivers

Get caregiving tips, advice, and support with Caring.com's online support groups. Connect with those who understand what you're going through. Share, vent, laugh, and feel less alone. We're here for you.

http://www.caring.com/support-groups

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If you have ever looked for a comprehensive list of links and resources for children needing services, look no further.  Also for ESL students, ASD, aphasia/TBI, etc.
http://www.mnsu.edu/comdis/kuster2/sptherapy.html#kid 

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Cerebral palsy (CP) is a disability caused by brain damage that restricts normal movement and coordination. Each year, 10,000 children in the U.S. are diagnosed with cerebral palsy. Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.”

http://www.cerebralpalsyguide.com/

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From information on cerebral palsy symptoms to financial assistance to daily living articles, CerebralPalsyGuidance.com covers all aspects of cerebral palsy. And all of our information is thoroughly researched and cited.
www.CerebralPalsyGuidance.com

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Cerebral Palsy Group - Cerebral Palsy Information, Resources, and Support
https://cerebralpalsygroup.com/

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This website helps people whose children have been born with Cerebral Palsy to understand their legal options. It also offers some great health and wellness information.
www.thecplawyer.com

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Parent to Parent USA - Promoting access, quality and leadership in parent to parent support across the country
http://www.p2pusa.org/

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“Families with a child who has a disability often need information about the disability of their child, about early intervention (for babies and toddlers), school services (for school-aged children), therapy, local policies, transportation, and much more. Every State has at least one Parent Training and information Center (PTI) to offer families just this kind of information.”

Maine Parent Federation
P.O. Box 2067
Augusta, ME 04338-2067
(800) 870-7746 (in ME) | (207) 623-2144

www.mpf.org

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Maine Parent Federation - Since 1984...because every family matters.  “Starting POINTS for Parents is an online community for families of children with disabilities.  Providing Opportunities for Information Networking, Training and Support as they learn, share and connect about the educational and developmental needs of their children.”

http://www.startingpointsforme.org/

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Parent Training and Information Centers exist in every state as well, along with a national Center: http://www.parentcenterhub.org/. 

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Raising Special Kids -
I’m so grateful to learn that Raising Special Kids is truly here to offer support. There is no catch, no gimmick, and no charge.  I have found emotional support from people who understand what it is like to have a child with special needs.”

http://www.raisingspecialkids.org/start-here/for-parents-families/

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The Cord Blood Center
Our team at cordbloodbanking.com provides the latest up-to-date information and free resources for expecting parents. There have been over 35,000 cord blood transplants thanks to donors worldwide. With more awareness we can increase this number and further save the lives of children suffering from cancers, blood disorders and many other serious disorders and disabilities including cerebral palsy.
https://www.cordbloodbanking.com/

“Cord blood treats over 80 diseases including leukemia and lymphoma. Donations are painless and are being used to save the lives of children and adults around the world.” Learn more in the free downloadable guide at our sister site https://www.cordbloodguide.com/, thanks! 

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 Home Modifications to Promote Independent Living
https://www.disability.gov/resource/home-modifications-to-promote-independent-living/

Disability Accommodation Cost Guide
http://www.homeadvisor.com/cost/disability-accommodation/

Fire Safety & Disabilities Guide
http://www.improvenet.com/a/fire-safety-and-disabilities-guide

Home Fire Safety Guides & Educational Resources
https://usinsuranceagents.com/home-fire-safety

Fire Safety for People with Disabilities - A Reference Guide:
This guide covers safety strategies for people with visual, hearing and mobility impairments, organized by chapters, with resources cited.
https://www.homesecuritylist.com/fire-safety-disabilities/

Disability.gov’s Guide to Transportation
https://www.disability.gov/resource/disability-govs-guide-transportation/

Rights for Those With Hearing Loss
http://www.ovationhearing.com/resources/rights-for-those-with-hearing-loss

Increasing Physical Activity among Adults with Disabilities
https://www.cdc.gov/ncbddd/disabilityandhealth/documents/disability-pa-infographic.pdf

Chronic Pain Relief with Swimming Exercises
http://blog.intheswim.com/chronic-pain-relief-with-swimming-exercises/

Stay Active with a Disability: Quick Tips
http://healthfinder.gov/HealthTopics/Category/health-conditions-and-diseases/obesity/stay-active-with-a-disability-quick-tips

Personal Finance Guide for People with Disabilities
http://www.calculators.org/savings/people-with-disabilities.php

Home Safety for People with Disabilities
http://www.redcross.org/get-help/prepare-for-emergencies/those-who-need-extra-help

Guide for Disabled Homebuyers
https://www.redfin.com/blog/guide-for-disabled-home-buyers

Disability.gov’s Guide to Transportation
https://www.disability.gov/resource/disability-govs-guide-transportation/

A Guide to Keeping Your Home for the Newly Disabled
http://www.mortgagecalculator.org/helpful-advice/keeping-your-home.php

More Adults with Disabilities Need to Get Physical Activity
https://www.cdc.gov/ncbddd/disabilityandhealth/features/10things-feature.html

Stay Active with a Disability: Quick Tips
http://healthfinder.gov/HealthTopics/Category/health-conditions-and-diseases/obesity/stay-active-with-a-disability-quick-tips

Depression and Disability
http://www.shinecharity.org.uk/uploads/media_items/depression-and-disability.original.pdf

Helping Alzheimer’s Sufferers Cope with the Loss of a Loved One
http://www.neptunesociety.com/resources/helping-alzheimers-sufferers-cope-with-the-loss-of-a-loved-one-a-guide-for-caregivers
 

Rheumatoid Arthritis (RA) is a chronic inflammatory disorder that typically affects the small joints in the hands and feet. Currently [2015], there are about 1.5 million Americans diagnosed with RA. RA is a systematic disease, which means that in severe cases it can affect your major organs like the heart and lungs, raising the risk of heart attack by up to 60%. By increasing awareness, millions of Americans will have the best opportunity to understand their prognosis, and improve their quality of life!
www.rheumatoidarthritis.org/

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Disaster Preparedness

Disaster Safety for People with Disabilities: What to Do When Emergency Weather Strikes
https://www.redfin.com/blog/disaster-safety-for-people-with-disabilities

Disaster Preparedness For Seniors By Seniors
http://www.redcross.org/images/MEDIA_CustomProductCatalog/m4640086_Disaster_Preparedness_for_Srs-English.revised_7-09.pdf

Safe travels: Disaster preparedness on the road
http://www.getreadyforflu.org/facts/DrivingDisastersWeb.pdf

How Mortgages Are Affected in Disaster-Prone Areas
https://mortgagecalculator.biz/resources/natural-disasters.php

Family Communication Plan for Parents
https://www.fema.gov/media-library-data/0e3ef555f66e22ab832e284f826c2e9e/FEMA_plan_parent_508_071513.pdf

Emergency Power Planning for People Who Use Electricity and Battery-Dependent Assistive Technology
https://adata.org/sites/adata.org/files/files/ADANN_Emergency_Power_planning-2016%20_%20final(1).pdf

Emergency Preparedness for People with Disabilities — Guide and Checklist
http://www.archives-pmr.org/article/S0003-9993(11)00833-1/pdf